The Cha-Cha of NICU Life

When I was on bedrest, my best friend Jessica had my girlfriends from all across the country send me inspirational quotes to help me get through the tough days. One that stood out most was by Robert Brault, "

"Optimist: Someone who figures that taking a step backward
after taking a step forward is not a disaster, it's a cha-cha.”

Yesterday we were rejoicing in Emme's progress with the NG tube removal. This morning she seemed okay while I was there, ate her whole feed but was very tired after having an ROP eye exam and blood labs. They mentioned that she had a few bradys that needed stim this morning. Even while I was there, they seemed more frequent than normal. I met Grant & Grace at the Y when I received the call that her hermatocrit levels were continuing on a downward trend, so it was time to consider a blood transfusion today. Fortunately, we were able to be there right away to discuss with Dr. B and sign the consent forms. While it is a pretty routine thing for premature babies, especially born at such an early gestation, we fortunately haven't had to cross this bridge until now. Yesterday we took a big step forward after getting off the feeding tube, today we may be taking a little step backwards so that we can make big leaps in the next few days.

image1 (5).JPG

In a few hours our little girl will be receiving someone else's blood. Although we have the same blood type, the hospital doesn't typically do direct transfusions, so we just have to continue in faith. In the spirit of dance, I feel compelled to liken the hospital staff to our dance partner- they have taken the lead, followed the music, and led us across a new dance floor- teaching us new steps, guiding into unknown territory and making the ordinary feel extraordinary every time we hold our precious one. 

We're living a Cha-Cha that would make the DWTS judges proud, I have no doubt!